LOST!

I've been sick for over a week now.  It's tough even getting up to use the bathroom.  I hate this feeling of helplessness.  I hate relying on others to help me feel better.  I'm used to doing things on my own...my own way...and most importantly...I'm used to taking care of myself.

Even while I am frustrated, I am also grateful.  I have seen a family that claims it it "LOST" without me....carry on  with really no complaining.  It's amazing what you can do....when put to the test.

I have seen my husband cooking, cleaning, bathing, taking kids to doctors appointments and showing me what it truly means to love.

So while I rest and catch up on my LOST episodes....I wanted my family to know...that it is ME that would be LOST without you.   Thank you for keeping going and for working so hard.  I love you!

Under the Weather

It's been a LONG week!  I met with the Neurologist and Neurosurgeon about my issues and possible shunt surgery, I spent almost 10 hrs in the ER, my 6 yr old son has mono and then I came down with Mono and a sinus infection.

I went into this week very excited for some possible answers to all the issues I have been having...but I became more and more frustrated when all I got was "I don't know".  Seems my "compensation" for NPH has thrown the doctors off, making them unsure on how to treat me.

I met with my general doctor today...And she wants to go ahead with the intracranial pressure monitoring...which will hopefully bring some answers.

One step forward, two steps back....Even in times of frustration, I try to keep in mind, that THRIVING doesn't always mean having a happy/positive attitude.  It means that you keep on going, despite being frustrated.

Hope you all have a great weekend!